We're proud to support Prader-Willi Syndrome Association of Victoria Inc. by donating half of the profit from every bottle you purchase.
Prader-Willi Syndrome Association of Victoria Inc.(PWSA) was established in 1978 by a group of parents of children affected by the syndrome. It's aims and objective was to serve as a support group to provide education, awareness about PWS and to one day have a respite home for their children. Today, PWSA Victoria continue to provide support and information to families and our fundraising efforts will help us achieve the wish of a respite home.
Prader-Willi Syndrome (PWS) is a rare and very complex genetic disorder in which several genes on the 15th chromosome are deleted or unexpressed. The common characteristics of this condition include small hands and feet, abnormal growth and body composition (small stature, very low lean body mass and early onset childhood obesity), hypotonia (weak muscles) at birth, insatiable hunger, extreme obesity and intellectual disability.
PWS is a lifelong condition and although lots of research is being carried out, to date there is no cure. There are no known reasons for the genetic accident that causes this condition, but we are learning more about PWS everyday, and there is hope. Hope that, through increased knowledge, we can help all people with this condition to live a fuller life despite their limitations.
Thank you for your support.
Select this and your order will help support Prader-Willi Syndrome Association of Victoria Inc.
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We give half of our profit to
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